So here I stand wearing nothing but a soft sports bra, and very soft panties because anything else against my skin is complete agony. The breeze from the fan keeps my body cool, maybe cooler than I want to feel, but turning it off would make me feel nauseous. This is how it starts. There is a mental checklist of red flags that signal I am about to have a flare-up.
I can almost feel my brain telling the over-active neurons within the central nervous system what body part it should attack. It usually starts with an intense tingling sensation in my right hand, moves quickly across my upper shoulders, then shoots down my spine, and then zap!… My body now starts to feel as if it has been set on fire, with nails being dragged across my burning flesh. Agony is what I feel and this sensation is called Allodynia. *
Did you think I was in a “ full flair” yet? Nope, this is just the start.
Ugh. My ears are so sensitive to sound! Why is everything on max volume? The fan that is keeping me from feeling nauseated, is making me freeze now. A few hours have passed and my body is experiencing about five to seven different sensations all at once, whether they go together or not. The feeling that my brain is too big for my skull, is a strange one. Around this time I usually start to throw –up, because the pain and my senses are on over-load. So now, here I lie on the hardwood floor, with a low –grade fever, my skin on fire, the bones in my spine and upper neck, and sometimes my face feels as if it is being completely crushed, and… I still have that burning sensation that feels like my skin is on fire that has not gone away! I need it to stop! Frustration!
If being physically robbed of your quality of life wasn’t enough, it takes your mental clarity, memory, and energy as well. One of the most frustrating. A symptom is called something called “ Fibro Fog”. Fibro fog is a cognitive dysfunction, which affects your ability to think clearly, and even remember the simplest thing. I have learned I do need a sense of humor when it comes to having fibromyalgia. More than once my cell phone was found in the refrigerator. If there is not humor towards yourself, this diagnosis will try to control your life. This is part of the reason why I have not posted in literally forever. I have been trying to manage my fibro and all the horrific and painful symptoms no one can do anything about.
* Technically Allodynia is the experience of feeling pain from stimuli that aren’t normally painful and the result of a pain processing dysfunction in the nervous system. * Though usually associated with migraines there is a crossover to fibromyalgia. There are three types of Allodynia: Static allodynia is what one feels from a light touch on the skin; Dynamic allodynia happens with movement across the skin; Thermal allodynia happens in response to mild changes in the temperature. Though usually associated with migraines there is a crossover to fibromyalgia. This is only one of the hundred life-altering symptoms one can experience, but this is enough for one day, at least for these fingers it is.
Disclaimer: No portion of this may be shared without my written permission and used as your own.